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Clay – Matthews: join the battle! Let us fight against Duchenne muscular dystrophy

Clay – Matthews (Clay Matthews) is the Green Bay Packers defensive core, he has an excellent defensive skills and a keen tactical awareness to stop endlessly collapse on the court again and again to attack the opponent, sent the nickname «White Devil». However, Matthews is not just a strong bounder, since he entered the league, has been concerned about public welfare, he is on the «star Forum» wrote the story:

In the beginning, I do not know there is something called Duchenne muscular dystrophy (Duchenne muscular dystrophy) disease, let alone have this disease know people.

In the second year of my career, I was invited to star in a cure for Duchenne muscular dystrophy taken by the Foundation’s public film. The Foundation provides financial support for the nation’s 300,000 young people and children suffering from this rare disease.

So I have this opportunity to learn about the disease and grief it brings.

In simple terms, is a kind of Duchenne muscular dystrophy occurs in young men who are rare muscle hypoplasia, their muscles atrophy quickly, most of them patients in a wheelchair at the age of 12, of which the vast majority live to see 30.

As a professional athlete, I can not imagine these children’s lives will be. I try every day to exercise their muscles, but they do not have this opportunity. Instead, these children and their families can only watch as their muscles atrophy every day.

These children deserve attention, my jerseys wholesale they should be treated.

In addition to increasing public attention to Duchenne muscular dystrophy, the biggest challenge is the fundraising foundation. Fund sponsors of Paul and Debra have a son with Duchenne muscular dystrophy. As if they are trying to find possible treatments found that because the disease is too sick people, drug companies unprofitable, so do not want to spend too much money to develop drugs. Therefore, holding his son’s determination to help them, both of them set up a non-profit organization to raise funds to find drugs. They boundless enthusiasm and dedication to the cause of the highly infectious. When I met their son, Hawken Miller, I found out why.

In a sense, Duchenne muscular dystrophy Hawken Miller has become a part of life. The first time I saw him, he was just in high school. I was to be his self-confidence and charisma, especially his determination to overcome the disease deeply moved. He can testify to grow from a boy into a good young man is itself an honor for me. He joined the football team, also took a driver’s license, he and wholesale nfl jerseys friends recently spent a weekend in the wild. Now he is one of Southern California’s journalism students. I’m sure he will make some of my article «opinions». (Hawken, do not be too strict for me)

In the beginning, more because Hawken I began to pay attention to this group. After all these years, because these children come from Duchenne muscular dystrophy and their families e-mail, cheap jersey supply us photos and cards, I put myself totally in this matter. It touched me the most is a gift signed by the 50 sick children jersey. I was fortunate to see many children afflicted by this disease, and I can assure you that I received from their determination to be encouraged where my words can not express much. They always hope, me too.

Six years ago, when I first learned of this disease, there is no hope of cure for it.

September this year, FDA has just approved a new drug called Exondys51 effectively its approximately 13% of patients with Duchenne muscular dystrophy. From funds to cure Duchenne muscular dystrophy fund to speed up the development process to market the drug. This is undoubtedly a silver lining for patients who never give up.

But the fly in the ointment is that this drug was not effective for Hawken, or is most of the patients are invalid.

Although this so we do a lot of six years.

But our goal is far from reach.

Children with Down’s muscular dystrophy and are in great difficulty doing daily struggle. This article would like to emphasize that this disease is promising to be cured. Lives of these children also can be saved. That’s what we’re doing.

Involved is simple, click CureDuchenne.org website, you can find direct contributions or other things in your community can do. I will be wearing this pair of spikes qualities of this week to support the organization.

Together we will defeat Duchenne muscular dystrophy


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